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At the time that Mukilteo resident Emily Osborne was diagnosed with Charcot-Marie-Tooth (CMT) there was virtually nothing known about it.

Osborne was diagnosed with CMT at 10-years-old.

“I just thought it was a weird thing I had to live with,” Osborne said. “I didn’t have anyone else to talk to about it. It was so rare, so my family never talked about it.”

CMT is a neurological disease, that affects one in every 2,500 people in the United States, according to the National Institute of Neurological Disorders and Stroke.

CMT affects motor and sensory nerves, eventually killing t...